In this post,
Shame and Medicine’s Farina Kokab explores the epistemic dimensions of her work
on women’s reproductive health.
Image credit: Wellcome Collection
Across
healthcare systems, women prepare themselves for consultations knowing that the
burden of proof often rests on them. Experiences of dismissal are not isolated
incidents but reflect a long-standing pattern in which women’s symptoms are
questioned, reframed, or minimised. This pattern cuts across chronic pain,
reproductive health, and autoimmune conditions, and is intensified for women
from marginalised ethnic and socioeconomic backgrounds. What appears, on the
surface, to be a communication gap is better understood as a form of epistemic
injustice embedded within medical training, clinical cultures, and
organisational structures.
Dismissal
rarely appears as an outright refusal to believe a patient. It often manifests
in subtle behaviours that cumulatively undermine credibility: the shift in
tone, the sigh, the avoidance of eye contact, the referral that leads nowhere,
or the decade-long delay in diagnosing endometriosis. These are all moments
through which women begin to question their own interpretations of their
bodies. Within biomedical frameworks that privilege measurable evidence,
women’s complex, fluctuating, and often invisible symptoms are easily
reattributed to mood, stress, or hormones. Such explanations position the
problems within the woman rather than within the condition, leaving her
responsible for both her suffering and the failure to resolve it.
This dynamic is
particularly stark in reproductive healthcare. After childbirth, women managing
tears, surgeries, and complications are frequently sent home with minimal
support, relying on limited resources, and the expectation that
over-the-counter analgesia will suffice. Requests for help may be interpreted
as exaggeration or dependency, reinforcing long-standing assumptions about
feminine emotionality. In these contexts, women learn that speaking up carries
risk: the risk of being labelled difficult, anxious, or attention-seeking.
Silence, then, becomes a strategy for self-preservation, even as it delays or
obstructs care.
Epistemic
injustice offers a useful lens for understanding these experiences. Testimonial
injustices occur when women’s accounts are given reduced credibility because of
gendered assumptions about reliability, exaggeration, or emotional instability.
Hermeneutical injustice appears when women lack the shared social or clinical
language to articulate phenomena such as birth trauma, reproductive coercion,
or chronic fatigue. Without interpretive frameworks that recognise these
experiences, women struggle to make themselves intelligible within clinical
encounters, and clinicians struggle to interpret their narratives in ways that
guide action. Dismissal, in this sense, is not merely a failure of empathy but
an epistemic harm with direct clinical consequences.
Structural
conditions further shape these encounters. Time-pressured appointments
encourage heuristic thinking, and organisational incentives prioritise
throughput over deliberative listening. Clinicians often face their own
emotional burdens when they cannot offer solutions, especially to patients who
repeatedly seek reassurance or validation. Intersectionality compounds these
challenges: women who are racialised, working class, migrants, or young are
more likely to be stereotyped and thus more vulnerable to epistemic exclusion
and exhaustion.
Women respond
to these credibility deficits with considerable efforts. They rehearse their
accounts before appointments, bring advocates to support their claims, modify
the way they describe pain, conduct their own research, or seek alternative
providers. These adaptive strategies illuminate the labour required simply to
be heard and highlight the structural gaps within the system. They show that
credibility must be worked for, rather than assumed, and that women often
navigate healthcare environments that are neither receptive nor prepared for
their stories.
Improving these
dynamics requires more than individual goodwill. Listening must be treated as a
clinical skill, central to diagnosis and care planning. Women’s interpretations
of their own bodies should be given meaningful space, especially in contexts of
diagnostic uncertainty. Organisational cultures that support curiosity,
collaborative reasoning, and shared decision-making can reduce the epistemic
burden placed on patients. Emerging work by female clinicians and advocacy
groups demonstrates that alternative models are possible.
Ultimately,
attending to epistemic justice is not just optional; it is necessary for safe
and equitable care. Recognising women as credible knowers of their own bodies
is a foundational step towards transforming healthcare encounters from sites of
dismissal into spaces of understanding.
References:
Fricker, M
(2007). Epistemic Injustice: Power and the Ethics of Knowing. Oxford
University Press
Werner, A.,
& Malterud, K. (2003). “It is hard work behaving as a credible patient:
encounters between women with chronic pain and their doctors” Social Science
& Medicine, 57(8), 1409-1419
Hoffman, D.E., & Tarzian, A.J. (2001). “The
girl who cried pain: a bias against women in the treatment of pain” Journal
of Law, Medicine & Ethics, 29(1), 13-27
Farina is an
experienced Qualitative Researcher with an interest in theoretical and
conceptual framing of health inequalities, specifically women’s reproductive
health. Her background in Psychology and Social Research enable her to
undertake inter-disciplinary research and teaching. She is currently working as
a Research Fellow on the Wellcome-Funded project, Shame and Medicine.