Showing posts with label self-diagnosis. Show all posts
Showing posts with label self-diagnosis. Show all posts

Wednesday, 11 March 2026

Self-diagnosis and its implications in child and adolescent psychiatry

This week's post by Christophe Gauld, Laelia Benoit, and Floriane Brunet considers how the increasing prevalence of self-diagnosis influences the relationship between clinicians and young patients.



In recent years, many adolescents have begun arriving at psychiatric consultations not to seek a diagnosis but to confirm one they already believe they have. They describe themselves as, for instance, autistic or having ADHD, after reading descriptions (online) that resonate with their experience. This phenomenon of self-diagnosis happily challenges established hierarchies of knowledge in psychiatry, especially in child and adolescent care.  

But it also raises an important question, which we explored in depth in a recent article: how should clinicians and young patients (re)position themselves in relation to one another, especially when differences in age and status necessarily influence the clinical relationship?

Let us recall that in most clinical contexts, diagnostic authority is concentrated in professional hands. And since psychiatric categories do not rely on biomarkers, the formulation of a diagnosis remain closely connected with social and moral judgments of harm. This interpretive dependence of diagnosis on clinicians creates an asymmetric epistemic space, in which the clinician’s account can prevail over the patient’s own lived experience and interpretation.

In children and adolescents, this imbalance could combine with childism, a form of discrimination that assumes the child’s voice is unreliable, immature or irrelevant. Like ageism, which marginalizes people because of age, childism operates on the same generational axis by devaluing children through assumptions of dependency and immaturity. It refers to a system of attitudes and practices that naturalise adult superiority, treating children as incomplete or incapable of rational understanding. Its specificity is in the transformation of developmental difference into a moral and social justification for inequality.

Childism operates structurally, embedded in institutional norms and clinical routines that reinforce adult authority and marginalise children’s voices. It frames adult perspectives as normative, establishing “standards of reason,” credibility and emotional coherence that children are expected to follow. In clinical practice, it appears to arise “naturally” from age differences. This naturalistic assumption biases how clinicians listen to patients whose discourse differs from their own. And this is compounded by the fact that childism intersects with other forms of discrimination (e.g., gender, disability, class, etc.), producing cumulative disadvantages that shape how young people are heard and understood.

To see how this might play out in clinical practice, consider an example. When, for instance, an adolescent comes to a clinician declaring “I think I’m autistic”, they do not simply misuse medical language. They reclaim interpretative power over their own experience. They demand recognition as knowers. These acts are epistemically and politically significant. They reveal how power and knowledge are interdependent in psychiatry: thus, although some self-diagnoses may rely on incomplete or misleading information, they also open a space for rethinking how clinical knowledge is shared and validated.

Due to their distinct conceptual histories and to the primary object of application of childism – i.e., childhood – epistemic injustice and childism are conceptually related and mutually reinforcing, operating across interconnected levels. Epistemic injustice designates a harm to someone’s capacity as a knower, which becomes visible within communicative and epistemic exchanges where authority and credibility are unequally allocated, and which contributes to broader structural patterns. 

Childism, in parallel, refers to the institutional norms, laws and professional practices that naturalise adult superiority, and which are enacted and reproduced within everyday clinical interactions. In this sense, childism both shapes and is shaped by interpersonal clinical practices, and epistemic injustice reflects how these normative assumptions are lived and negotiated in concrete encounters in child and adolescent psychiatry. Together, these overlapping dynamics help explain how self-diagnosis makes visible the ways credibility, authority and recognition are distributed in clinical care.


Bios

Christophe Gauld is a French adolescent psychiatrist with a PhD in philosophy of psychiatry (Université Paris 1 Sorbonne).


Laelia Benoit, MD, PhD, is a child and adolescent psychiatrist and researcher affiliated with Yale University and Inserm. Her work focuses on qualitative and mixed-methods research, child mental health, and the social and systemic determinants of psychiatric care..
Floriane Brunet is a French child psychiatrist and holds a university diploma in philosophy of psychiatry.

Wednesday, 14 January 2026

Combatting Epistemic Injustice through Self-diagnosis

Endometriosis is a chronic disease characterised by the growth of endometrial tissue outside of the uterine cavity (Parasar, 2017). Symptoms include infertility, cyclical and non-cyclical chronic pelvic pain, dysmenorrhoea (painful lower abdominal cramping during menstruation that effects quality of life), dyspareunia (pain during sexual intercourse), dyschezia (pain on defecation) and dysuria (pain on urinating) (Horne, 2022).


Endometriosis


The path to diagnosis can be long with an average wait time of 8 years and 10 months in the UK. According to Endometriosis UK, throughout this journey, many people feel dismissed by doctors and struggle to feel heard. 

As a response to the struggle to receive diagnosis, many have identified this condition themselves through research, resulting in self-diagnosis (Hallstrom, 2024).

Epistemic injustice and self-esteem

The gold standard test for diagnosing endometriosis is laparoscopic surgery (Allaire, 2023). According to NICE, more accessible tests, such as examinations and ultrasound scans, cannot be used to exclude it.  Therefore, referral for surgery strongly relies on testimony. This testimony is vulnerable to epistemic injustice. 

Fricker describes epistemic injustice as the idea that people can be discriminated against in their capacity as a knower based on prejudices about them. Testimonial injustice is where prejudices impact the credibility given to a knower’s testimony. Hermeneutical injustice is structural discrimination due to gaps in resources attributed to underrepresentation of marginalised individuals (Byskov, 2021). 

By denying credibility to these testimonies, we devalue contributions of experience and are dismissive of patients’ attempts to understand themselves. This undermines epistemic self-esteem by creating situations where people question their judgement of their experiences (Hallstrom, 2024).

I argue that self-diagnosis can combat epistemic injustice by improving communication in consultations.  This may not result in confirmation of the self-diagnosis but can combat the undermining of epistemic self-esteem.  

Communication

Effective bidirectional communication is vital in healthcare. However, the use of different language and concepts to express their situation between the patient and the clinician can cause misunderstandings. This can constitute testimonial injustice as their pain may fulfil the referral criteria but be denied due to their language not reflecting or mimicking the official NICE guidance surrounding the pathological pain of endometriosis. This undermines epistemic self-esteem by devaluing the patient’s contribution.   

The processes involved in self-diagnosis can combat this through creating access to communication aids. These aids, such as The Endometriosis Toolkit, can bridge the gap in communication by targeting language, providing a guide for noting observations and exploring other symptoms (check out the Menstrual health project). This can combat testimonial injustice by promoting a shared language and promoting effective communication. Therefore, epistemic self-esteem is maintained by having contributions valued. 

However, barriers to finding communicative aids online include variations in digital literacy. By encouraging individuals to improve their knowledge, whilst not supporting those unable to access resources, we risk worsening epistemic disparities. However, these aids are now available to those on social media and through schools, as in 2021 the UK Department for Education has mandated menstrual education which includes advice on when to seek help.

As many patients are young when symptoms first appear, discussions with those in their social groups are vital (Hallstrom, 2024). They can compare their symptoms to their peers and medical framework. Understanding the framework in doctors’ appointments can help them communicate their issue in accordance with guidelines, allowing them to access resources. This knowledge can diminish testimonial injustice through promoting a shared language and promote epistemic self-esteem by valuing their testimony.


Endometriosis


Dismissal of self-diagnosis

Affirmation of one’s self-diagnosis is not the aim of the appointment, but rather is a starting point for discussion. It can help understand and communicate the patient’s perspective. This questioning of symptoms and self-diagnosis can feel undermining, but effective communication in consultations can validate experiences even if the conclusion is not the acceptance of one’s self-diagnosis. When experiences are validated, damage to epistemic self-esteem can be negated.



This post is by Emily Bywater, a recent graduate from the University of Birmingham who completed an elective project with Kathleen Murphy-Hollies on tackling epistemic injustice in healthcare, with a focus on endometriosis. She provides us with a summary of her essay, which explores the philosophical and ethics issues which relate to practicing as a doctor.